Sonya Sukalski
@sonyasukalski
Retired in 2022. I enjoy writing, gardening, hiking, biking, and new ideas.
Sonya Sukalski
@sonyasukalski
Retired in 2022. I enjoy writing, gardening, hiking, biking, and new ideas.
How exhausting it is to go up against the system
Lost in a featureless wasteland of my own mortality, and finding no traction in the reams of scientific studies, intracellular molecular pathways, and endless curves of survival statistics, I began reading literature again: Solzhenitsyn’s Cancer Ward, B. S. Johnson’s The Unfortunates, Tolstoy’s Ivan Ilyich, Nagel’s Mind and Cosmos, Woolf, Kafka, Mo
... See moreThe tricky part of illness is that, as you go through it, your values are constantly changing. You try to figure out what matters to you, and then you keep figuring it out. It felt like someone had taken away my credit card and I was having to learn how to budget. You may decide you want to spend your time working as a neurosurgeon, but two months
... See moreI hope I can find all these great ideas if and when I need them. How different life would be if there were no need to remember, to hoard, to angst about stuff I want to know, or when it might be helpful.
“I wish I could say you get used to people dying. I never did. I don't want to. It tears a hole through me whenever somebody I love dies, no matter the circumstances. But I don't want it to "not matter." I don't want it to be something that just passes.... See more
“My scars are a testament to the love and the relationship that I had for and with that person. A
Beautiful! I hope if I have to come back and read this that it gives some solace.
My dad wanted me to know about this interview with Jon Baptiste whose wife had cancer…
Jon Batiste Almost Got Kicked Out Of Juilliard : Fresh Air : NPR
This song from the show New Amsterdam always touches me with it’s simplicity and gentleness.
https://open.spotify.com/track/52h1R2xNPFrNh7U9Yghcjq?si=ed31b1661d5f4587
I think that most people who say, “Everything happens for a reason,” can fuck off to a frigid cave,
Every cancer doctor has said some version of, “we don’t know what causes cancer. No two cancers are exactly the same. Certain genes are turned on or off, and we don’t know why.” They also say, “There will be plenty of things to worry about later, so don’t try to do all the worrying right now. We work as a team during the transplant, and when you are in the hospital, because there are better outcomes all around.” What they don’t say is hopefully the one with cancer also has a team. We certainly do, and I have taken a deep dive into gratitude because of it. The neighbors bringing: gluten free everything bagels, roasted chicken, potatoes and carrots, stuffed peppers, vegan chili, vegan chickpea stew, cookies, hangar steak with mushrooms, green beans, broccoli, polenta… Friends checking in, sending poetry, funny and inspiring videos, stories, messages of encouragement. Family checking in much more than usual, offering to come and help with the care-giver responsibilities, helping with the every day chores, telling me about new resources. Friends taking me to tea, organizing a meet at a nearby brewpub, offering for us to stay at their house near the hospital, bringing pumpkins to carve, and offering to come sing Christmas songs.
The fatigue of grief is fucking staggering.
I wish I knew more the context for this quote, and I thank whoever it was that put Rob Delaney’s book on my radar! It has been hard to account for the fatigue. It feels like I do nothing but wait around in the transfusion clinic or at the hospital. And then give up more of what I thought made my life fulfilling. Not that those things really do, or that they are more important than being with my spouse through his bone marrow transplant story. But yeah, the fatigue is real.
My cancer would go into remission, sparing my life, but the epiphanies sparked by this personal confrontation with death have stuck with me. They’ve led me to reshuffle my priorities and to totally change my life. I spend far more time with my wife and daughters, and moved to be closer to my aging mother. I have dramatically cut down my presence on
... See moreInsight from someone living it!