Chronic illness/disability

in my fatigue and pain I couldn’t find the words to make myself legible to others. (And I still have not found them. This text is full of silences and vagueness and lacunae: when I write “brain fog,” I imagine that your mind slides over the idea, unless you, too, have suffered from it.)

To be a sick person is to know that you are always, simply by being alive and being unwell, someone else’s rude awakening.

To become chronically ill is not only to have a disease that you have to manage, but to have a new story about yourself, a story that many people refuse to hear—because it is deeply unsatisfying, full of fits and starts, anger, resentment, chasms of unruly need.