when the world assumes wellness
By 1932, the historian Henry E. Sigerist had noted that medicine’s systemizing impulses were “no longer concerned with man but with disease,” as Anderson and Mackay point out.
Meghan O'Rourke • The Invisible Kingdom: Reimagining Chronic Illness
But here’s the problem with modernity. We live in a time where we are surrounded by stressors. Right now, I have 56 emails in my inbox that need my attention. My body is responding to that with stress (this body of ours is also not great at knowing the difference between life-and-death stressors and the kinds of stressors that won’t kill me). My un
... See moreMegan Anna Neff • The Zoomies and This Week’s Round Up
To the degree that my quest had an object, that object turned out to be learning to live with uncertainty and incapacity.
Meghan O'Rourke • The Invisible Kingdom: Reimagining Chronic Illness
something like autoimmune disease or long COVID falls into the third category of illness; it combines biology and biography in ways that are difficult for most of us (whether scientists or laypeople) to conceptualize.
Meghan O'Rourke • The Invisible Kingdom: Reimagining Chronic Illness
I watched the lives of others with a sense of wistfulness. I missed the burn of Scotch in my throat, the loose joy of a dinner party where everyone got a little high on talk. I wanted to be sloppy and fun again. “How are you doing?” Gina asked one morning. “I don’t know if I can take this anymore,” I told her. “I just want to get better. I want to
... See moreMeghan O'Rourke • The Invisible Kingdom: Reimagining Chronic Illness

our medical system, for all its extraordinary capabilities, is ill-equipped to handle the steep rise in this kind of chronic illness. That system is great at providing acute care and terrible at managing the complexities of long-term care.
Meghan O'Rourke • The Invisible Kingdom: Reimagining Chronic Illness
"Would diagnosis matter so much in a world where all people and patients had more power – one where we did not have to constantly prove ourselves to employers, to medical professionals and to the benefits system to get our fundamental needs met? A system of social organisation in which healthcare and other healing processes centred informed consent
... See moreEveryone who is born holds dual citizenship, in the kingdom of the well and in the kingdom of the sick. Although we all prefer to use only the good passport, sooner or later each of us is obliged, at least for a spell, to identify ourselves as citizens of that other place. —Susan Sontag, Illness as Metaphor