We have become archivists of the self, I thought, curators of a life half-lived. Each countless photograph of a wonder, of dinner, of a view, of our children, of the utter banality of our everyday lives, was not a memento, a way of remembering the things we did, but instead evidence of the poverty of our engagement with the present moment.
As they compared notes, McCorkell and a handful of others — many of whom had research experience — realized that the information they were sharing might be helpful not only for those with long COVID, but also for those looking to study the condition. So, they founded a non-profit organization, called the Patient-Led Research Collaborative (PLRC), t... See more