Sonya Sukalski
@sonyasukalski
Retired in 2022. I enjoy writing, gardening, hiking, biking, and new ideas.
Sonya Sukalski
I think that most people who say, “Everything happens for a reason,” can fuck off to a frigid cave,
Rob Delaney • A Heart That Works
Every cancer doctor has said some version of, “we don’t know what causes cancer. No two cancers are exactly the same. Certain genes are turned on or off, and we don’t know why.” They also say, “There will be plenty of things to worry about later, so don’t try to do all the worrying right now. We work as a team during the transplant, and when you are in the hospital, because there are better outcomes all around.” What they don’t say is hopefully the one with cancer also has a team. We certainly do, and I have taken a deep dive into gratitude because of it. The neighbors bringing: gluten free everything bagels, roasted chicken, potatoes and carrots, stuffed peppers, vegan chili, vegan chickpea stew, cookies, hangar steak with mushrooms, green beans, broccoli, polenta… Friends checking in, sending poetry, funny and inspiring videos, stories, messages of encouragement. Family checking in much more than usual, offering to come and help with the care-giver responsibilities, helping with the every day chores, telling me about new resources. Friends taking me to tea, organizing a meet at a nearby brewpub, offering for us to stay at their house near the hospital, bringing pumpkins to carve, and offering to come sing Christmas songs.
Too often, we view the fight as an unalloyed virtue. Instead of sharing our preferences and desires before we get ill (as though it’s some sort of bad luck charm), we simply hope for the best and then wait far too long (and create too much family stress) before embracing the next step in our journey.
Seth Godin • Palliative care
We tend to overestimate what we can do in a day, and underestimate what we can achieve in a decade. Miraculous things can be accomplished if you give it ten years. A long game will compound small gains to overcome even big mistakes.
Kevin Kelly • 103 Bits of Advice I Wish I Had Known
My cancer would go into remission, sparing my life, but the epiphanies sparked by this personal confrontation with death have stuck with me. They’ve led me to reshuffle my priorities and to totally change my life. I spend far more time with my wife and daughters, and moved to be closer to my aging mother. I have dramatically cut down my presence on
... See moreKai-Fu Lee • AI Superpowers: China, Silicon Valley, and the New World Order
Insight from someone living it!
When people feel like they belong, they are able to do their best and be their best. When we work toward belonging, we’re working toward creating a space where collaboration and cooperation can flourish. This is true for every kind of group, big and small. Whether you’re a parent, teacher, business manager, community organizer, or leader of any... See more
Stanford Engineering Staff • Design to make a difference: How do we foster a culture of belonging?
The tricky part of illness is that, as you go through it, your values are constantly changing. You try to figure out what matters to you, and then you keep figuring it out. It felt like someone had taken away my credit card and I was having to learn how to budget. You may decide you want to spend your time working as a neurosurgeon, but two months
... See morePaul Kalanithi • When Breath Becomes Air
I hope I can find all these great ideas if and when I need them. How different life would be if there were no need to remember, to hoard, to angst about stuff I want to know, or when it might be helpful.
In our society, the spaces for adults to play are mostly constrained, for example, to sports, or going to the pub. And opportunities to live a life of imagination are reserved for exceptionally privileged people, like designers, actors, artists and film directors. This lack of imagination in our lives is an existential risk for society and... See more
Medium • Rewilding the Imagination
The fatigue of grief is fucking staggering.
Rob Delaney • A Heart That Works
I wish I knew more the context for this quote, and I thank whoever it was that put Rob Delaney’s book on my radar! It has been hard to account for the fatigue. It feels like I do nothing but wait around in the transfusion clinic or at the hospital. And then give up more of what I thought made my life fulfilling. Not that those things really do, or that they are more important than being with my spouse through his bone marrow transplant story. But yeah, the fatigue is real.