Sonya Sukalski
@sonyasukalski
Retired in 2022. I enjoy writing, gardening, hiking, biking, and new ideas.
Sonya Sukalski
@sonyasukalski
Retired in 2022. I enjoy writing, gardening, hiking, biking, and new ideas.
Lost in a featureless wasteland of my own mortality, and finding no traction in the reams of scientific studies, intracellular molecular pathways, and endless curves of survival statistics, I began reading literature again: Solzhenitsyn’s Cancer Ward, B. S. Johnson’s The Unfortunates, Tolstoy’s Ivan Ilyich, Nagel’s Mind and Cosmos, Woolf, Kafka,
... See morespouse, rather than the patient): “We’re gonna fight and beat this thing, Doc.” The armament varies, from prayer to wealth to herbs to stem cells. To me, that hardness always seems brittle, unrealistic optimism the only alternative to crushing despair.
Insightful, and my response, guided by the wisdom of “Stress Less, Accomplish More” is to meditate twice a day, and let all the challenges surface, inform me, and integrate however they need to.
Over the past couple of years my dad and sister have been battling cancer and my mum has had two strokes. This also made them more vulnerable during the coronavirus pandemic. Spending time with them and helping to look after them, plus coming to terms with the idea of losing them, has been a real challenge emotionally, especially as we live in
... See moreVulnerability, fragility, how COVID plays into being immune compromised and living in a household that needs a low microbial load could be a whole book. Maybe this is the place to envision some new corner.
The fatigue of grief is fucking staggering.
I wish I knew more the context for this quote, and I thank whoever it was that put Rob Delaney’s book on my radar! It has been hard to account for the fatigue. It feels like I do nothing but wait around in the transfusion clinic or at the hospital. And then give up more of what I thought made my life fulfilling. Not that those things really do, or that they are more important than being with my spouse through his bone marrow transplant story. But yeah, the fatigue is real.
Too often, we view the fight as an unalloyed virtue. Instead of sharing our preferences and desires before we get ill (as though it’s some sort of bad luck charm), we simply hope for the best and then wait far too long (and create too much family stress) before embracing the next step in our journey.