Sonya Sukalski
@sonyasukalski
Retired in 2022. I enjoy writing, gardening, hiking, biking, and new ideas.
Sonya Sukalski
Too often, we view the fight as an unalloyed virtue. Instead of sharing our preferences and desires before we get ill (as though it’s some sort of bad luck charm), we simply hope for the best and then wait far too long (and create too much family stress) before embracing the next step in our journey.
Seth Godin • Palliative care
My dad wanted me to know about this interview with Jon Baptiste whose wife had cancer…
Jon Batiste Almost Got Kicked Out Of Juilliard : Fresh Air : NPR
UUA Statement on the Humanitarian Catastrophe in Gaza and Israel
uua.org
Unitarian Universalists position on Israel and Gaza
People underestimate compounding and long games. When people think “that’s not possible”, “you can’t do that”, “that won’t work”, it’s often because they’re imagining something like 5 years, 10 years. Things get very different when you have 50 year plans
Visakan Veerasamy • visakanv's 50yr "plan" for global nerd network [wip]
Lost in a featureless wasteland of my own mortality, and finding no traction in the reams of scientific studies, intracellular molecular pathways, and endless curves of survival statistics, I began reading literature again: Solzhenitsyn’s Cancer Ward, B. S. Johnson’s The Unfortunates, Tolstoy’s Ivan Ilyich, Nagel’s Mind and Cosmos, Woolf, Kafka,
... See morePaul Kalanithi • When Breath Becomes Air
I think that most people who say, “Everything happens for a reason,” can fuck off to a frigid cave,
Rob Delaney • A Heart That Works
Every cancer doctor has said some version of, “we don’t know what causes cancer. No two cancers are exactly the same. Certain genes are turned on or off, and we don’t know why.” They also say, “There will be plenty of things to worry about later, so don’t try to do all the worrying right now. We work as a team during the transplant, and when you are in the hospital, because there are better outcomes all around.” What they don’t say is hopefully the one with cancer also has a team. We certainly do, and I have taken a deep dive into gratitude because of it. The neighbors bringing: gluten free everything bagels, roasted chicken, potatoes and carrots, stuffed peppers, vegan chili, vegan chickpea stew, cookies, hangar steak with mushrooms, green beans, broccoli, polenta… Friends checking in, sending poetry, funny and inspiring videos, stories, messages of encouragement. Family checking in much more than usual, offering to come and help with the care-giver responsibilities, helping with the every day chores, telling me about new resources. Friends taking me to tea, organizing a meet at a nearby brewpub, offering for us to stay at their house near the hospital, bringing pumpkins to carve, and offering to come sing Christmas songs.